{"id":5059,"date":"2025-06-26T11:48:49","date_gmt":"2025-06-26T09:48:49","guid":{"rendered":"https:\/\/lupusgalicia.org\/?p=5059"},"modified":"2025-06-26T11:49:17","modified_gmt":"2025-06-26T09:49:17","slug":"declaracion-institucional-en-el-parlamento-gallego","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=5059","title":{"rendered":"Declaraci\u00f3n institucional en el Parlamento Gallego"},"content":{"rendered":"\n\n\n\n<div style=\"height:37px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">La <strong>Asociaci\u00f3n Gallega de Lupus (AGAL)<\/strong> ha participado recientemente, de la mano de <strong>Otsuka<\/strong>, junto con <strong>ALCER Galicia<\/strong> y la <strong>Sociedad Gallega de Nefrolog\u00eda<\/strong>, en una importante iniciativa institucional celebrada en el <strong>Parlamento de Galicia<\/strong> centrada en la salud renal.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Durante el acto, se present\u00f3 la <strong>Declaraci\u00f3n Institucional sobre la Enfermedad Renal Cr\u00f3nica (ERC)<\/strong>, un documento en el que el Parlamento manifiesta su compromiso con la prevenci\u00f3n, detecci\u00f3n precoz, tratamiento e investigaci\u00f3n de esta enfermedad, que representa un reto sanitario y social de primer orden.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">La Enfermedad Renal Cr\u00f3nica: un problema de salud p\u00fablica<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">La <strong>ERC<\/strong> es una enfermedad <strong>silenciosa y progresiva<\/strong> que afecta a un n\u00famero creciente de personas en Galicia, en Espa\u00f1a y en todo el mundo. Se estima que <strong>1 de cada 7 gallegas y gallegos<\/strong> padece alg\u00fan grado de ERC, y m\u00e1s de <strong>4.000 personas<\/strong> en nuestra comunidad requieren tratamientos sustitutivos como la di\u00e1lisis o el trasplante renal.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Por ello, es fundamental <strong>reforzar las estrategias de prevenci\u00f3n y detecci\u00f3n precoz<\/strong>, no solo para evitar el avance de la enfermedad, sino tambi\u00e9n para <strong>prevenir complicaciones asociadas<\/strong>, especialmente cardiovasculares, y <strong>mejorar la calidad de vida<\/strong> de las personas afectadas.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Los puntos clave de la Declaraci\u00f3n Institucional<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">El <strong>Parlamento de Galicia<\/strong>, consciente del impacto de la ERC, hizo p\u00fablica una declaraci\u00f3n en la que se compromete a:<\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><strong>Impulsar campa\u00f1as anuales de sensibilizaci\u00f3n<\/strong>, especialmente en torno al D\u00eda Mundial del Ri\u00f1\u00f3n.<\/li>\n\n\n\n<li><strong>Fomentar la prevenci\u00f3n y la detecci\u00f3n temprana<\/strong>, fundamentales para frenar la progresi\u00f3n de la enfermedad.<\/li>\n\n\n\n<li><strong>Garantizar apoyo psicosocial y laboral<\/strong>, as\u00ed como el acceso individualizado a tratamientos como la di\u00e1lisis (incluyendo hemodi\u00e1lisis domiciliaria y di\u00e1lisis peritoneal) y el trasplante renal, incluyendo la donaci\u00f3n en vivo.<\/li>\n\n\n\n<li><strong>Reforzar la colaboraci\u00f3n entre instituciones, entidades y profesionales<\/strong>, apostando por un enfoque integral.<\/li>\n\n\n\n<li><strong>Apoyar la investigaci\u00f3n y la innovaci\u00f3n<\/strong> en nefrolog\u00eda, e impulsar planes como el de Atenci\u00f3n Integral a las personas con ERC.<\/li>\n\n\n\n<li><strong>Dar mayor visibilidad a la nefrolog\u00eda<\/strong>, reconociendo su papel esencial en la atenci\u00f3n sanitaria.<\/li>\n<\/ol>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Un llamamiento al compromiso colectivo<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">La declaraci\u00f3n institucional concluye con un <strong>llamamiento a la ciudadan\u00eda, al personal sanitario y a las instituciones p\u00fablicas y privadas<\/strong> a unirse a los esfuerzos de prevenci\u00f3n, detecci\u00f3n y tratamiento de la ERC.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El lema <strong>\u201cCuida tus ri\u00f1ones, cuida tu vida\u201d<\/strong> resume perfectamente el esp\u00edritu de esta iniciativa: <strong>la salud renal debe ser una prioridad compartida<\/strong>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Desde AGAL valoramos profundamente esta iniciativa y agradecemos poder formar parte de ella. Somos plenamente conscientes de que <strong>las personas con lupus tambi\u00e9n pueden desarrollar afectaci\u00f3n renal<\/strong>, por lo que respaldar acciones como esta forma parte de nuestro compromiso con la salud integral, la informaci\u00f3n y el bienestar de las personas afectadas.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Seguiremos trabajando en red con otras entidades e instituciones para visibilizar, informar y mejorar la atenci\u00f3n a las personas con enfermedades cr\u00f3nicas.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Lectura Declaraci\u00f3n Institucional | Presidente do Parlamento Galego, D. Miguel Santalices.\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/E6_xPDkUW3Q?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>La Asociaci\u00f3n Gallega de Lupus (AGAL) ha participado recientemente, de la mano de Otsuka, junto con ALCER Galicia y la Sociedad Gallega de Nefrolog\u00eda, en una importante iniciativa institucional celebrada en el Parlamento de Galicia centrada en la salud renal. Durante el acto, se present\u00f3 la Declaraci\u00f3n Institucional sobre la Enfermedad Renal Cr\u00f3nica (ERC), un [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5063,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1],"tags":[],"class_list":["post-5059","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Declaraci\u00f3n institucional en el Parlamento Gallego - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=5059\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"Declaraci\u00f3n institucional en el Parlamento Gallego - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"La Asociaci\u00f3n Gallega de Lupus (AGAL) ha participado recientemente, de la mano de Otsuka, junto con ALCER Galicia y la Sociedad Gallega de Nefrolog\u00eda, en una importante iniciativa institucional celebrada en el Parlamento de Galicia centrada en la salud renal. 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Asociaci\u00f3n Galega de Lupus. Creada en 1997. Pretendemos dar informaci\u00f3n sobre el Lupus y que la enfermedad deje de ser una gran desconocida; ayudar a familiares y amigos; promover investigaci\u00f3n; divulgar y relacionar a nuestros asociados a trav\u00e9s de Jornadas, la revista Papilio, charlas, reuniones...\",\"sameAs\":[\"http:\/\/www.lupusgalicia.org\"],\"url\":\"https:\/\/lupusgalicia.org\/?author=1\"}]}<\/script>\r\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Declaraci\u00f3n institucional en el Parlamento Gallego - Asociaci\u00f3n Galega de Lupus","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/lupusgalicia.org\/?p=5059","og_locale":"es_ES","og_type":"article","og_title":"Declaraci\u00f3n institucional en el Parlamento Gallego - Asociaci\u00f3n Galega de Lupus","og_description":"La Asociaci\u00f3n Gallega de Lupus (AGAL) ha participado recientemente, de la mano de Otsuka, junto con ALCER Galicia y la Sociedad Gallega de Nefrolog\u00eda, en una importante iniciativa institucional celebrada en el Parlamento de Galicia centrada en la salud renal. 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