{"id":230,"date":"2014-03-31T23:31:28","date_gmt":"2014-03-31T23:31:28","guid":{"rendered":"http:\/\/lupusgalicia.org\/?p=230"},"modified":"2014-03-31T23:33:21","modified_gmt":"2014-03-31T23:33:21","slug":"peticion-de-cremas-solares-como-medicamento","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=230","title":{"rendered":"Petici\u00f3n de cremas solares como medicamento"},"content":{"rendered":"<blockquote>\n<h1 style=\"text-align: center;\"><span style=\"color: #800080;\">Al Lupus, como a otras enfermedades (porfiria, p\u00e9nfigo, etc..) \u00a0les perjudica enormemente el sol.<\/span><\/h1>\n<p>Para nosotros las cremas de protecci\u00f3n solar son una medicina.<\/p>\n<p>Hasta hace poco en Galicia se reconoc\u00eda esta necesidad. Ahora, tras los recortes, retrocedimos.<\/p>\n<h2 style=\"text-align: center;\">Por eso, uno de los socios de AGAL y miembro de <span style=\"color: #800080;\">FELUPUS ha hecho una petici\u00f3n a trav\u00e9s de Change que queremos que apoyes.<\/span> Aqui tienes su carta:<\/h2>\n<p>&nbsp;<\/p>\n<p>\u00abHe iniciado la petici\u00f3n \u00ab<span style=\"color: #ff6600;\">Ministerio de Sanidad: La Federaci\u00f3n Espa\u00f1ola de Lupus reivindica que los fotoprotectores para los afectados de LUPUS se incluyan en el listado de medicamentos financiados por el Sistema Nacional de Salud.<\/span>\u00bb y necesito que me ayudes a hacerla despegar.<\/p>\n<p>\u00bfTienes medio minuto para firmarla ahora mismo? Puedes hacerlo aqu\u00ed:<\/p>\n<p><a href=\"http:\/\/www.change.org\/es\/peticiones\/ministerio-de-sanidad-la-federaci%C3%B3n-espa%C3%B1ola-de-lupus-reivindica-que-los-fotoprotectores-para-los-afectados-de-lupus-se-incluyan-en-el-listado-de-medicamentos-financiados-por-el-sistema-nacional-de-salud?utm_source=guides&amp;utm_medium=email&amp;utm_campaign=petition_created\" target=\"_blank\">http:\/\/www.change.org\/es\/peticiones\/ministerio-de-sanidad-la-federaci\u00f3n-espa\u00f1ola-de-lupus-reivindica-que-los-fotoprotectores-para-los-afectados-de-lupus-se-incluyan-en-el-listado-de-medicamentos-financiados-por-el-sistema-nacional-de-salud<\/a><\/p>\n<p>Es importante por todo esto:<\/p>\n<p>&nbsp;<\/p>\n<p><strong><em>La importancia de la fotoprotecci\u00f3n<\/em><\/strong><em><\/em><\/p>\n<p><strong>Entre los factores que pueden desencadenar un lupus o provocar un brote de esta enfermedad est\u00e1n los rayos ultravioletas y otras luces fluorescentes<\/strong>, adem\u00e1s del consumo de ciertos medicamentos, una infecci\u00f3n, algunos antibi\u00f3ticos o el estr\u00e9s acentuado.<\/p>\n<p><em>Respecto al primero, los enfermos de lupus tienen un alto grado de fotosensibilidad (sensibilidad a los rayos Ultravioletas UV del sol y otras fuentes artificiales), de la cual se derivan una serie de reacciones fotosensibles como erupciones cut\u00e1neas, fiebre, fatiga, dolor articular y otros s\u00edntomas de LES.\u00a0<strong>En algunos casos han llegado a provocar afectaci\u00f3n del ri\u00f1\u00f3n. Por lo tanto, una de las precauciones que deben extremar los enfermos de lupus es la de no exponerse al sol, ya que \u00e9ste es uno de los desencadenantes de los brotes de la enfermedad.\u00a0<\/strong><br \/>\n<\/em><\/p>\n<p><em>Todos \u00a0los pacientes con lupus \u00a0tienen fotosensibilidad, \u00a0son enfermos a los cuales la luz \u00a0les afecta y por tanto les produce lesiones en la piel y tienen riesgo de que les aparezca un brote por el sol.<\/em><\/p>\n<p><em>Por ello siempre es imprescindible recomendarles cautela al exponerse al sol.<br \/>\nNo hay que olvidar que los rayos del sol tambi\u00e9n est\u00e1n presentes en los d\u00edas nublados y que el paciente que es sensible a la luz, lo es tambi\u00e9n a los rayos ultravioletas\u00a0del tipo A (rayos UVA).\u00a0<strong>La exposici\u00f3n al sol es una causa de reactivaci\u00f3n de la\u00a0 enfermedad.<\/strong><\/em><\/p>\n<p><em><strong>Por eso solicitamos que los fotoprotectores 50+ sean considerados como medicamentos para el lupus y no productos cosm\u00e9ticos como hasta ahora.<\/strong><\/em><\/p>\n<p>&nbsp;<\/p>\n<p>Puedes firmar mi petici\u00f3n\u00a0<a href=\"http:\/\/www.change.org\/es\/peticiones\/ministerio-de-sanidad-la-federaci\u00f3n-espa\u00f1ola-de-lupus-reivindica-que-los-fotoprotectores-para-los-afectados-de-lupus-se-incluyan-en-el-listado-de-medicamentos-financiados-por-el-sistema-nacional-de-salud\" target=\"_blank\">haciendo clic aqu\u00ed.<\/a><\/p>\n<p>Gracias.<br \/>\nTino Brion\u00bb<\/p>\n<p>&nbsp;<\/p><\/blockquote>\n","protected":false},"excerpt":{"rendered":"<p>Al Lupus, como a otras enfermedades (porfiria, p\u00e9nfigo, etc..) \u00a0les perjudica enormemente el sol. Para nosotros las cremas de protecci\u00f3n solar son una medicina. Hasta hace poco en Galicia se reconoc\u00eda esta necesidad. Ahora, tras los recortes, retrocedimos. Por eso, uno de los socios de AGAL y miembro de FELUPUS ha hecho una petici\u00f3n a [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[4],"tags":[15],"class_list":["post-230","post","type-post","status-publish","format-standard","hentry","category-en-espana","tag-apoyo"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Petici\u00f3n de cremas solares como medicamento - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=230\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"Petici\u00f3n de cremas solares como medicamento - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"Al Lupus, como a otras enfermedades (porfiria, p\u00e9nfigo, etc..) \u00a0les perjudica enormemente el sol. 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