{"id":1628,"date":"2016-05-05T02:27:00","date_gmt":"2016-05-05T00:27:00","guid":{"rendered":"http:\/\/lupusgalicia.org\/?p=1628"},"modified":"2016-05-09T13:00:46","modified_gmt":"2016-05-09T11:00:46","slug":"nota-informativa-10-de-mayo-2016","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=1628","title":{"rendered":"Nota informativa: 10 de mayo 2016"},"content":{"rendered":"<h1><span style=\"color: #800080;\"><strong>10 de mayo: D\u00eda Mundial del Lupus<\/strong><\/span><\/h1>\n<p><strong>El pr\u00f3ximo 10 de mayo<\/strong>, martes se celebra el <strong>DIA MUNDIAL DEL LUPUS<\/strong> y la <strong>Asociaci\u00f3n Galega de Lupus<\/strong> realizar\u00e1 una serie de actos para dar m\u00e1s informaci\u00f3n a la poblaci\u00f3n sobre nuestra enfermedad.<\/p>\n<h4 style=\"text-align: center;\"><strong><span style=\"color: #800080;\">\u00a1TODO UN MES DE ACTIVIDADES!<\/span><\/strong><\/h4>\n<p>AGAL comenz\u00f3 el mes de mayo con una mesa redonda titulada \u00abConvivir con lupus\u00bb en Riveira (Centro Cultural Manuel Lustres Rivas) a las 20:00h . La charla qued\u00f3 inaugurada por D.Manuel Ruiz Rivas, Alcalde de Riveira, pues para su organizaci\u00f3n contamos con la ayuda de M\u00aa Esther Pati\u00f1o Rey, Concejala de Servicios Sociales y de nuestra delegada, Loli Caderno.<\/p>\n<p>Participaron el Dr Manuel Pombo (reumat\u00f3logo del CHUS) y D\u00f1a Lorena Afonso (nutricionista) tal como estaba porgramado. El otro invitado D.Diego Aragunde no pudo participar porque tuvimos una sorpresa en el \u00faltimo minuto y es que vino el Dr G\u00f3mez Reino, Jefe del Departamento de Reumatolog\u00eda del Complejo Hospitalario Universitario de Santiago (CHUS) que hizo una introducci\u00f3n a la intervenci\u00f3n del Dr Pombo, aclarando qu\u00e9 es una enfermedad autoinmune.<\/p>\n<h1><span style=\"color: #800080;\"><strong>El a\u00f1o pasado conseguimos iluminar en p\u00farpura la Torre de H\u00e9rcules, este a\u00f1o<\/strong> <strong>se iluminar\u00e1n tambi\u00e9n otros monumentos gallegos.<\/strong><\/span><\/h1>\n<p>&nbsp;<\/p>\n<h2>Empezar\u00e1 con la Torre de H\u00e9rcules el lunes 9 a partir de las 21:00 y estar\u00e1 iluminada en nuestro color hasta la 1 de la ma\u00f1ana del martes 10 de mayo,\u00a0<strong>DIA MUNDIAL DEL LUPUS. A partir de esa hora hacemos una convocatoria para realizar una peque\u00f1a coreograf\u00eda y hacer una gran fotograf\u00eda conjunta con todos y todas los\/as asistentes.<\/strong><\/h2>\n<p>&nbsp;<\/p>\n<p><strong>Y la noche del martes 10 de mayo tambi\u00e9n iluminaremos:<\/strong><\/p>\n<ul>\n<li><strong>Fuente de Cuatro Caminos (A Coru\u00f1a)<\/strong><\/li>\n<li><strong>Paraguas \u201cRia O Burgo\u201d (A Coru\u00f1a)<\/strong><\/li>\n<li><strong>Puerta San Fernando en la Muralla (Lugo)<\/strong><\/li>\n<li><strong>Fachada Excma. Diputaci\u00f3n Provincial (Lugo)<\/strong><\/li>\n<li><strong><u>As Burgas<\/u><\/strong><strong> (Ourense)<\/strong><\/li>\n<li><strong>Fuentes de c\/ Arag\u00f3n (Vigo)<\/strong><\/li>\n<\/ul>\n<p><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/13096310_1040136052721027_7077375913463573269_n.jpg\" rel=\"attachment wp-att-1629\"><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-1629 aligncenter\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/13096310_1040136052721027_7077375913463573269_n-300x225.jpg\" alt=\"13096310_1040136052721027_7077375913463573269_n\" width=\"396\" height=\"296\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/13096310_1040136052721027_7077375913463573269_n-300x225.jpg 300w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/13096310_1040136052721027_7077375913463573269_n.jpg 720w\" sizes=\"auto, (max-width: 396px) 100vw, 396px\" \/><\/a><\/p>\n<p><strong><em><u>Te agradecemos que nos ayudes a darle voz a este d\u00eda. Son muchos los afectados de lupus que a\u00fan no saben que lo son. Tenemos que hacer que m\u00e1s gente, incluido el personal sanitario, conozca la enfermedad y sus s\u00edntomas porque cuanto antes la diagnostiquen m\u00e1s bueno ser\u00e1 el pron\u00f3stico.<\/u><\/em><\/strong><\/p>\n<p><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0004.jpg\" rel=\"attachment wp-att-1625\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1625 alignleft\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0004-200x300.jpg\" alt=\"IMG-20160503-WA0004\" width=\"137\" height=\"207\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0004-200x300.jpg 200w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0004-768x1152.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0004.jpg 1066w\" sizes=\"auto, (max-width: 137px) 100vw, 137px\" \/><\/a><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0003.jpg\" rel=\"attachment wp-att-1624\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1624 alignnone\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0003-200x300.jpg\" alt=\"IMG-20160503-WA0003\" width=\"146\" height=\"217\" \/><\/a><\/p>\n<p><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002.jpg\" rel=\"attachment wp-att-1623\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1623 alignright\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002-200x300.jpg\" alt=\"IMG-20160503-WA0002\" width=\"141\" height=\"212\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002-200x300.jpg 200w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002-768x1152.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002-683x1024.jpg 683w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002.jpg 1066w\" sizes=\"auto, (max-width: 141px) 100vw, 141px\" \/><\/a><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0002.jpg\" rel=\"attachment wp-att-1623\"><br \/>\n<\/a><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001.jpg\" rel=\"attachment wp-att-1622\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1622 alignright\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001-200x300.jpg\" alt=\"IMG-20160503-WA0001\" width=\"132\" height=\"198\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001-200x300.jpg 200w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001-768x1152.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001-683x1024.jpg 683w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/05\/IMG-20160503-WA0001.jpg 1066w\" sizes=\"auto, (max-width: 132px) 100vw, 132px\" \/><\/a><\/p>\n<p>Adem\u00e1s instalaremos <strong>mesas informativas<\/strong> en varias ciudades gallegas (ver recuadro inferior) . Como este a\u00f1o el d\u00eda 10 es un martes, se planearon actividades desde el s\u00e1bado 7.<\/p>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #800080;\"><u>Puntos de postulaci\u00f3n y mesas informativas en Galicia.<\/u><\/span><\/h3>\n<p><strong>\u00a0<\/strong><\/p>\n<table width=\"432\">\n<tbody>\n<tr>\n<td width=\"121\"><strong>CIUDAD<\/strong><\/td>\n<td width=\"312\"><strong>Punto de informaci\u00f3n y cuestaci\u00f3n<\/strong><\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>A CORU\u00d1A<\/strong><\/td>\n<td width=\"312\"><u>Martes 10<\/u>:<\/p>\n<p>\u00d8 Nuevos Ministerios 9:30 -15:00 h<\/p>\n<p>\u00d8 Juan Florez (Cortefiel), todo el d\u00eda<\/p>\n<p>\u00d8 Nuevos Juzgados 9:30 -15:00 h<\/p>\n<p>\u00d8 Obelisco, Cant\u00f3n Grande, 10:00-20:00<\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>NOIA Y PADR\u00d3N<\/strong><\/td>\n<td width=\"312\"><u>Las mesas de informaci\u00f3n que fueron postergadas por el mal tiempo <\/u>se har\u00e1n a la vuelta del Congreso Nacional de Lupus en Oviedo. \u00a1Os informaremos! Perdonad las molestias.<\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>SANTIAGO<\/strong><\/td>\n<td width=\"312\"><u>Martes 10 <\/u>:<\/p>\n<p>\u00d8 CHUS (horario de ma\u00f1ana)<\/p>\n<p>&nbsp;<\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><\/td>\n<td width=\"312\"><\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>LUGO:<\/strong><\/td>\n<td width=\"312\"><u>Martes 10<\/u>:<\/p>\n<p>\u00d8 Plaza Mayor (Ayuntamiento) de 16:30 a 20:00<\/p>\n<p>\u00d8 HULA (9:30- 13:30h)<\/p>\n<p>\u00d8 Frente a Diputaci\u00f3n (16:30-20:30h) La <strong><u>Academia de Danza \u201cRitmoLugo\u201d<\/u><\/strong><u>, realizar\u00e1 con algunos de sus alumnos una coreograf\u00eda para acompa\u00f1arnos en este d\u00eda, colaborando de esta forma en nuestra Delegaci\u00f3n. Ser\u00e1 a las <strong>18:00h<\/strong> aproximadamente, en frente a la Diputaci\u00f3n.<\/u><\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>OURENSE<\/strong><\/td>\n<td width=\"312\"><u>Martes 10<\/u>:<\/p>\n<p>\u00d8 C.H.O.U. (Hospital Santa Mar\u00eda Nai) 10:00 A 14:00<\/p>\n<p>\u00d8 R\u00daA PASEO, ESQUINA PARQUE SAN L\u00c1ZARO 10 10:00 a 20:00 o 16:00 a 20:00 (depende de voluntarios)<\/td>\n<\/tr>\n<tr>\n<td width=\"121\"><strong>VIGO<\/strong><\/td>\n<td width=\"312\"><u>Martes 10<\/u>:<\/p>\n<p>\u00d8 C.C.Camelias de 10:00 A 14:00<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p><strong><u>\u00a0<\/u><\/strong><\/p>\n<p><strong><u>Y cerraremos las actividades del DML con nuestras XVIII Jornadas Gallegas de Lupus, con tres d\u00edas de convivencia y charlas informativas en el Hotel Cabicastro en Portonovo los d\u00edas 3,4 y 5 de JUNIO. TODO UN MES POR EL LUPUS.<\/u><\/strong><\/p>\n<p>&nbsp;<\/p>\n<p><strong>Qu\u00e9 es el Lupus<\/strong><\/p>\n<p>El Lupus es una enfermedad autoinmune. El sistema inmunol\u00f3gico del afectado de lupus, ataca las c\u00e9lulas del propio cuerpo provocando da\u00f1o en los tejidos y lesiones en \u00f3rganos vitales. Se trata de una enfermedad que padecen m\u00e1s de cinco millones de personas en todo el mundo y cuyo n\u00famero aumenta cada a\u00f1o en m\u00e1s de 100.000, de las que en su gran mayor\u00eda son mujeres (90%), en edad productiva y reproductiva (14- 40), con todas las consecuencias que esto lleva.<\/p>\n<p>Se trata de una dolencia cr\u00f3nica e inflamatoria que puede afectar a varias partes del cuerpo, especialmente la piel, las articulaciones, la sangre y los ri\u00f1ones. Existen, fundamentalmente, dos tipos de Lupus el discoide y el sist\u00e9mico. El Lupus <strong>discoide<\/strong> siempre se limita a la piel. En aproximadamente el 10% de los pacientes, el lupus discoide puede convertirse en la forma sist\u00e9mica de la enfermedad y afectar casi a cualquier \u00f3rgano o sistema del cuerpo. El lupus <strong>sist\u00e9mico<\/strong> suele ser m\u00e1s serio que el lupus discoide y puede afectar a casi cualquier \u00f3rgano del cuerpo. En algunas personas solamente la piel y las articulaciones est\u00e1n afectadas. Para otros, tambi\u00e9n los pulmones, los ri\u00f1ones, el sistema circulatorio, etc&#8230; Generalmente <strong><u>no hay dos lupus iguales.<\/u><\/strong><\/p>\n<p><strong>La investigaci\u00f3n m\u00e9dica sobre el Lupus<\/strong> y, el <strong>reconocimiento de la importancia que este enfermedad<\/strong> son dos de los puntos fundamentales de este d\u00eda.<\/p>\n<p>Para cualquier informaci\u00f3n, pueden ponerse en contacto:<\/p>\n<p>Nuria Carballeda Feijoo (Presidente): 606 848 581 \/ <a href=\"mailto:presidencia@lupusgalicia.org\">presidencia@lupusgalicia.org<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>ASOCIACI\u00d3N GALEGA DE LUPUS \u2013AGAL<\/p>\n<p><a href=\"http:\/\/www.lupusgalicia.org\/\">http:\/\/www.lupusgalicia.org\/<\/a><\/p>\n<p><a href=\"https:\/\/www.facebook.com\/pages\/Asociaci%C3%B3n-Galega-de-Lupus\/564373226963981?ref=hl\">Facebook: \u202a#\u200eLupusGaliciaAGAL<br \/>\n\u202a#\u200eAsociaci\u00f3nGalegadeLupus\u00a0\u202a#\u200e10MayoD\u00edaMundialdelLupus<\/a><\/p>\n<p><a href=\"https:\/\/www.facebook.com\/pages\/Asociaci%C3%B3n-Galega-de-Lupus\/564373226963981?ref=hl\">Actividades del DML: <u>https:\/\/lupusgalicia.org\/?p=1596<\/u><\/a><\/p>\n<p>&nbsp;<\/p>\n<p><em><u>Te agradecemos que nos ayudes a darle voz a este d\u00eda. Son muchos los afectados de lupus que a\u00fan no saben que lo son. Tenemos que hacer que m\u00e1s gente, inclu\u00eddo el personal sanitario, conozca la enfermedad y sus s\u00edntomas porque cuanto antes la diagnostiquen m\u00e1s bueno ser\u00e1 el pron\u00f3stico.<\/u><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>10 de mayo: D\u00eda Mundial del Lupus El pr\u00f3ximo 10 de mayo, martes se celebra el DIA MUNDIAL DEL LUPUS y la Asociaci\u00f3n Galega de Lupus realizar\u00e1 una serie de actos para dar m\u00e1s informaci\u00f3n a la poblaci\u00f3n sobre nuestra enfermedad. \u00a1TODO UN MES DE ACTIVIDADES! AGAL comenz\u00f3 el mes de mayo con una mesa [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[3,11,21],"tags":[25,22,27],"class_list":["post-1628","post","type-post","status-publish","format-standard","hentry","category-agal","category-galicia","category-jornadas-y-congresos","tag-actividades","tag-dia-mundial-lupus","tag-jornadas-y-congresos-2"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Nota informativa: 10 de mayo 2016 - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=1628\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"Nota informativa: 10 de mayo 2016 - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"10 de mayo: D\u00eda Mundial del Lupus El pr\u00f3ximo 10 de mayo, martes se celebra el DIA MUNDIAL DEL LUPUS y la Asociaci\u00f3n Galega de Lupus realizar\u00e1 una serie de actos para dar m\u00e1s informaci\u00f3n a la poblaci\u00f3n sobre nuestra enfermedad. \u00a1TODO UN MES DE ACTIVIDADES! 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