{"id":1524,"date":"2016-02-29T00:33:50","date_gmt":"2016-02-28T22:33:50","guid":{"rendered":"http:\/\/lupusgalicia.org\/?p=1524"},"modified":"2016-02-29T00:33:50","modified_gmt":"2016-02-28T22:33:50","slug":"agal-apoya-creando-redes-de-esperanza","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=1524","title":{"rendered":"AGAL apoya \u00abCreando redes de esperanza\u00bb"},"content":{"rendered":"<p>Ese es el lema central de la Campa\u00f1a \u00a0de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER), en el que participa FEGEREC y nosotros como parte de esta \u00faltima.<\/p>\n<p><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/sdmer2016_b56f729c.jpg\" rel=\"attachment wp-att-1529\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-1529 aligncenter\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/sdmer2016_b56f729c-300x200.jpg\" alt=\"_sdmer2016_b56f729c\" width=\"300\" height=\"200\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/sdmer2016_b56f729c-300x200.jpg 300w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/sdmer2016_b56f729c.jpg 640w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p>La campa\u00f1a de sensibilizaci\u00f3n y recaudaci\u00f3n de fondos del D\u00eda Mundial de las Enfermedades raras comenz\u00f3 el viernes. As\u00ed durante los d\u00edas 26, 27, 28 ,29 y 1 de marzo se instalan mesas informativas y de cuestaci\u00f3n en diferentes puntos de la geograf\u00eda gallega. Estas actividades est\u00e1n enmarcadas en el D\u00eda Mundial de las Enfermedades Raras que se celebra el lunes 29 de febrero.<\/p>\n<p>De estos d\u00edas de participaci\u00f3n os mostramos algunas fotos de apoyo a la campa\u00f1a.<\/p>\n<figure id=\"attachment_1527\" aria-describedby=\"caption-attachment-1527\" style=\"width: 300px\" class=\"wp-caption alignleft\"><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004.jpg\" rel=\"attachment wp-att-1527\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1527 size-medium\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004-300x169.jpg\" alt=\"IMG-20160227-WA0004\" width=\"300\" height=\"169\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004-300x169.jpg 300w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004-768x432.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004-1024x576.jpg 1024w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0004.jpg 1328w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-1527\" class=\"wp-caption-text\">En Vigo<\/figcaption><\/figure>\n<figure id=\"attachment_1525\" aria-describedby=\"caption-attachment-1525\" style=\"width: 300px\" class=\"wp-caption alignright\"><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001.jpg\" rel=\"attachment wp-att-1525\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-1525\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001-300x170.jpg\" alt=\"En Santiago\" width=\"300\" height=\"170\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001-300x170.jpg 300w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001-768x434.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001-1024x579.jpg 1024w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160227-WA0001.jpg 1344w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-1525\" class=\"wp-caption-text\">En Santiago<\/figcaption><\/figure>\n<p>Ay\u00fadanos a hacer visible las enfermedades raras, si nos ves \u00a1danos apoyo! GRACIAS.<\/p>\n<p>En Culleredo, Nuria Carballeda ha conseguido una foto de apoyo del Concello de Culleredo. Est\u00e1n todos los partidos: PSOE, PP, C&#8217;s, BNG, Marea Culleredo y Alternativa dos Veci\u00f1os&#8230; En la imagen est\u00e1 tambi\u00e9n el Sr. Alcalde.<\/p>\n<figure id=\"attachment_1528\" aria-describedby=\"caption-attachment-1528\" style=\"width: 300px\" class=\"wp-caption aligncenter\"><a href=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000.jpg\" rel=\"attachment wp-att-1528\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-1528\" src=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000-300x110.jpg\" alt=\"Concello de Culleredo\" width=\"300\" height=\"110\" srcset=\"https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000-300x110.jpg 300w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000-768x281.jpg 768w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000-1024x375.jpg 1024w, https:\/\/lupusgalicia.org\/wp-content\/uploads\/2016\/02\/IMG-20160226-WA0000.jpg 1600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-1528\" class=\"wp-caption-text\">Concello de Culleredo<\/figcaption><\/figure>\n<ul>\n<li>\n<h3><span style=\"color: #ff0000;\">Las enfermedades raras son, en su mayor parte, cr\u00f3nicas y degenerativas<\/span><\/h3>\n<\/li>\n<li>\n<h3><span style=\"color: #ff0000;\">El 65% de estas patolog\u00edas son graves e invalidantes<\/span><\/h3>\n<\/li>\n<li>\n<h3><span style=\"color: #ff0000;\">2 de cada 3 aparecen antes de los dos a\u00f1os<\/span><\/h3>\n<\/li>\n<li>\n<h3><span style=\"color: #ff0000;\">1 de cada 5 enfermos padecen dolores cr\u00f3nicos<\/span><\/h3>\n<\/li>\n<\/ul>\n<h4>FEGEREC (Federaci\u00f3n Galega de Enfermedades Raras e Cr\u00f3nicas) est\u00e1 compuesta por las Asociaciones de Ataxia (<a href=\"http:\/\/blog.ataxias-galicia.org\/\">AGA<\/a>), Lupus (AGAL), <a href=\"http:\/\/www.fqgalicia.org\/\">Fibrosis qu\u00edstica<\/a>, \u00a0Esclerosis M\u00faltiple de Coru\u00f1a (<a href=\"https:\/\/www.facebook.com\/acemesclerosis\">ACEM<\/a>), ELA (<a href=\"http:\/\/agaela.es\/\">AGAELA<\/a>), Retinosis pigmentaria (<a href=\"http:\/\/www.agarp.org\/\">AGARP<\/a>), Linfedema (<a href=\"http:\/\/www.linfedemagalicia.com\/\">AGL<\/a>), Malformaci\u00f3n de Chiari (<a href=\"http:\/\/www.arnoldchiari.es\/\">ANAC<\/a>) -en esta \u00faltima tambi\u00e9n est\u00e1n siringomielia, hidrocefalia&#8230;- , \u00a0la enfermedad de Beh<strong>\u00e7et y la asociaci\u00f3n de enfermedades ultrararas.<\/strong><\/h4>\n","protected":false},"excerpt":{"rendered":"<p>Ese es el lema central de la Campa\u00f1a \u00a0de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER), en el que participa FEGEREC y nosotros como parte de esta \u00faltima. La campa\u00f1a de sensibilizaci\u00f3n y recaudaci\u00f3n de fondos del D\u00eda Mundial de las Enfermedades raras comenz\u00f3 el viernes. As\u00ed durante los d\u00edas 26, 27, 28 ,29 y [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[23,11],"tags":[25,15,12],"class_list":["post-1524","post","type-post","status-publish","format-standard","hentry","category-colaboraciones","category-galicia","tag-actividades","tag-apoyo","tag-ee-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>AGAL apoya &quot;Creando redes de esperanza&quot; - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=1524\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"AGAL apoya &quot;Creando redes de esperanza&quot; - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"Ese es el lema central de la Campa\u00f1a \u00a0de la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER), en el que participa FEGEREC y nosotros como parte de esta \u00faltima. 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