{"id":1394,"date":"2015-11-23T02:22:14","date_gmt":"2015-11-23T00:22:14","guid":{"rendered":"http:\/\/lupusgalicia.org\/?p=1394"},"modified":"2015-11-23T02:22:14","modified_gmt":"2015-11-23T00:22:14","slug":"la-percepcion-del-paciente-con-les-en-la-creacion-de-una-guia-de-practica-clinica","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=1394","title":{"rendered":"La percepci\u00f3n del paciente con LES en la creaci\u00f3n de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica"},"content":{"rendered":"

\u00a0Ha sido publicado el estudio sobre la participaci\u00f3n de los pacientes con LES para desarrollar una Gu\u00eda Pr\u00e1ctica Cl\u00ednica para dicha dolencia. Dicha GCP se editar\u00e1 proximamente.\u00a0<\/span><\/h1>\n
<\/div>\n
El objetivo del estudio era incorporar la perspectiva de los pacientes en el dise\u00f1o de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica (GPC) para el Lupus Eritematoso Sist\u00e9mico en Espa\u00f1a.<\/div>\n
Pedro Serrano-Aguilar (Jefe de Servicio de Evaluaci\u00f3n y Planificaci\u00f3n en la Direcci\u00f3n del Servicio Canario de la Salud y responsable de la ( ETS) Unidad de Evaluaci\u00f3n de Tecnolog\u00edas Sanitarias) es el director del proyecto.<\/div>\n
<\/div>\n
\"Pedro-Serrano-600x330\"<\/a><\/div>\n
Del estudio se desprende que los problemas de salud est\u00e1n clasificados entre f\u00edsicos, psicol\u00f3gicos, familiares y socio-econ\u00f3micos. La insatisfacci\u00f3n se debe mayormente a la necesidad de informaci\u00f3n y el acceso limitado a la atenci\u00f3n. En la consulta (muestra 102 casos) los problemas de salud m\u00e1s relatados fueron el dolor, la fatiga, la fotosensibilidad, trastornos en el estado de \u00e1nimo, el da\u00f1o renal, la falta de concentraci\u00f3n y p\u00e9rdida de memoria. Los pacientes tambi\u00e9n mostraron insatisfacci\u00f3n con la mala coordinaci\u00f3n entre la atenci\u00f3n primaria y la especializada.<\/div>\n
Ibservaron que muchos pacientes buscaban informaci\u00f3n para autogestionar su dolencia y tambi\u00e9n en terapias alternativas. Importantes t\u00f3picos sobre ambas cuestiones fueron discutidos por el grupo que desarrollaba la GPC para formular las preguntas que ayudar\u00edan en su elaboraci\u00f3n.<\/div>\n
Al final el grupo confirm\u00f3 el valor de la\u00a0\u00a0participaci\u00f3n de los pacientes en el desarrollo de la GPC \u00a0para mejorar el dise\u00f1o de la gu\u00eda, as\u00ed como\u00a0extender el valor y el uso potencial de la GPC m\u00e1s all\u00e1 de los profesionales de la salud.<\/div>\n
Implicaciones pr\u00e1cticas La participaci\u00f3n de los pacientes en el desarrollo de la GPC es necesaria para ayudar a que el Servicios de Salud avance hacia la atenci\u00f3n centrada en el paciente. Se vio que la participaci\u00f3n de los pacientes es factible y \u00fatil, contribuyendo a abordar las brechas entre las necesidades contextuales del paciente (trabajo, familia, pareja) y la evidencia disponible. Estas lagunas no siempre son satisfechas por los m\u00e9dicos participantes y los investigadores.<\/div>\n
<\/div>\n
Informaci\u00f3n cedida por P. Serrano-Aguilar a Felupus y aparecida tambi\u00e9n en PEC (Patient Education and Counseling)<\/a><\/div>\n
<\/div>\n
<\/div>\n","protected":false},"excerpt":{"rendered":"

\u00a0Ha sido publicado el estudio sobre la participaci\u00f3n de los pacientes con LES para desarrollar una Gu\u00eda Pr\u00e1ctica Cl\u00ednica para dicha dolencia. Dicha GCP se editar\u00e1 proximamente.\u00a0 El objetivo del estudio era incorporar la perspectiva de los pacientes en el dise\u00f1o de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica (GPC) para el Lupus Eritematoso Sist\u00e9mico en Espa\u00f1a. […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[4,14],"tags":[44],"class_list":["post-1394","post","type-post","status-publish","format-standard","hentry","category-en-espana","category-estudios","tag-estudios"],"yoast_head":"\r\nLa percepci\u00f3n del paciente con LES en la creaci\u00f3n de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=1394\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"La percepci\u00f3n del paciente con LES en la creaci\u00f3n de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"\u00a0Ha sido publicado el estudio sobre la participaci\u00f3n de los pacientes con LES para desarrollar una Gu\u00eda Pr\u00e1ctica Cl\u00ednica para dicha dolencia. Dicha GCP se editar\u00e1 proximamente.\u00a0 El objetivo del estudio era incorporar la perspectiva de los pacientes en el dise\u00f1o de una Gu\u00eda de Pr\u00e1ctica Cl\u00ednica (GPC) para el Lupus Eritematoso Sist\u00e9mico en Espa\u00f1a. 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