{"id":1259,"date":"2015-07-10T18:44:14","date_gmt":"2015-07-10T16:44:14","guid":{"rendered":"http:\/\/lupusgalicia.org\/?p=1259"},"modified":"2015-07-10T18:44:14","modified_gmt":"2015-07-10T16:44:14","slug":"la-congreso-de-los-eeuu-aprobo-la-ley-de-curas-del-s-xxi","status":"publish","type":"post","link":"https:\/\/lupusgalicia.org\/?p=1259","title":{"rendered":"La Congreso de los EEUU aprob\u00f3 la Ley de Curas del s.XXI"},"content":{"rendered":"<p>Dicha ley presentada hoy (10-7-15) tiene el potencial de mejorar el proceso de desarrollo de f\u00e1rmacos en enfermedades cr\u00f3nicas como el Lupus. Muchos activistas de la Lupus Foundation of America (LFA) , \u00a0algunos no s\u00f3lo de EEUU, han enviado miles de cartas a los miembros del Congreso para pedirles que apoyasen el proyecto de ley. \u00a0En 50 a\u00f1os s\u00f3lo se aprob\u00f3 un medicamento espec\u00edfico para Lupus pero para los estimados 1,5 millones de estadounidenses y los 5 millones que viven en el mundo con alguna clase de Lupus , una medicina nunca ser\u00e1 suficiente para tratar esta enfermedad cruel y misteriosa.<\/p>\n<p>La propuesta, encabezada por el congresista Fred Upton (representante de Michigan) ofrece:<\/p>\n<ul>\n<li>una ayuda adicional de $ 8750 millones de d\u00f3lares en fondos para Institutos Nacionales de Salud;<\/li>\n<li>establecer una asociaci\u00f3n publico-privada para recopilar datos y<\/li>\n<li>mejorar la comprensi\u00f3n de las enfermedades cr\u00f3nicas<\/li>\n<li>apoyar el desarrollo de f\u00e1rmacos centrados en los pacientes<\/li>\n<li>modernizar el dise\u00f1o de ensayos cl\u00ednicos y de su proceso de revisi\u00f3n.<\/li>\n<\/ul>\n<p>Este es el primer paso. La acci\u00f3n es trasladada ahora al Senado de los EEUU. Pero la LFA estar\u00e1 en contacto con el Congreso para hacerles llegar la necesidad de una financiaci\u00f3n s\u00f3lida para la investigaci\u00f3n del Lupus y el desarrollo de nuevos medicamentos para nosotros.<\/p>\n<p>M\u00e1s informaci\u00f3n en <a href=\"http:\/\/www.lupus.org\/general-news\/entry\/u.s.-house-of-representatives-passes-21st-century-cures-act?utm_source=21st+Century+Cures+Email&amp;utm_campaign=AMP&amp;utm_medium=email\">LFA<\/a>\u00a0. El v\u00eddeo tiene puntos muy interesantes.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Dicha ley presentada hoy (10-7-15) tiene el potencial de mejorar el proceso de desarrollo de f\u00e1rmacos en enfermedades cr\u00f3nicas como el Lupus. Muchos activistas de la Lupus Foundation of America (LFA) , \u00a0algunos no s\u00f3lo de EEUU, han enviado miles de cartas a los miembros del Congreso para pedirles que apoyasen el proyecto de ley. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[5],"tags":[15,42],"class_list":["post-1259","post","type-post","status-publish","format-standard","hentry","category-lupus-internacional","tag-apoyo","tag-investigacion"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>La Congreso de los EEUU aprob\u00f3 la Ley de Curas del s.XXI - Asociaci\u00f3n Galega de Lupus<\/title>\r\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\r\n<link rel=\"canonical\" href=\"https:\/\/lupusgalicia.org\/?p=1259\" \/>\r\n<meta property=\"og:locale\" content=\"es_ES\" \/>\r\n<meta property=\"og:type\" content=\"article\" \/>\r\n<meta property=\"og:title\" content=\"La Congreso de los EEUU aprob\u00f3 la Ley de Curas del s.XXI - Asociaci\u00f3n Galega de Lupus\" \/>\r\n<meta property=\"og:description\" content=\"Dicha ley presentada hoy (10-7-15) tiene el potencial de mejorar el proceso de desarrollo de f\u00e1rmacos en enfermedades cr\u00f3nicas como el Lupus. 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